Saturday, May 12, 2007
618 days, 0 hours, 38 minutes, 33 seconds
A three-alarm fire in a Bronx post office this afternoon, around three o'clock. The post office closed to the public at two. It's Saturday. Last day to mail before the rates go up. Two workers were in the back room sorting mail. They suffered minor injuries, along with seventeen firemen. No mail was damaged. Years ago she reminded him that if he didn't like stopping at the mailbox, he never should have married a mailbox dwarf. After years of complaining, he's trying to make up for it now.
618 days, 1 hours, 28 minutes, 36 seconds
It's about time. Five different clocks he gave her over the years. The Backwards Bush clock – one on her computer, one on this blog, four key chains. She was thinking of buying a desk clock as well. But time's running out. If she's going to be spending a fortune on doctors, all that time with doctors , the last thing she wants to be reminded of is that Bush might outlive her. Besides, there's the craft fair this weekend down by the museum. And she remembers the Fantasy Clocks there – clocks she's looked at longingly every spring and fall, as possible gifts. Plenty of distractions. A melange of gears. A slide viewer modeled on those old stereo opticon viewers (he throws in three slides), a wind-up music box ("We're Off To See the Wizard"). She replaces a biplane with Wonder Woman. Replaces a Tarot Card with a postcard sent from the Amityville Beach in 1935. Before the horrors. Before her parents met. Before lungs ever thought to fill with water.
618 days, 1 hours, 45 minutes, 18 seconds
She's smoked maybe ten cigarettes. Never inhaled. The first time she smoked dope, out at her cousin's in California, she got incredibly paranoid. They were growing some plants out back, and a deer had been eating them. They talked about what they'd do if they caught that deer, and she took it as a metaphor for what they'd do to her if she told her uncle they'd let her smoke with them. She remembers Engelbert Humperdinck on the stereo, and how slow the music seemed. She remembers sitting at the table, lifting food to her mouth. Her mother smoked the first twelve years of her life. Her husband smoked the first four years they were together, quitting the year before they married. It was when the restaurants started smoking sections. They went someplace new, she said the smoking section, he said non-smoking. He'd run out of cigarettes two weeks ago. She hadn't noticed. Cold turkey. Second hand. Her mother bringing home selected items from when she worked the charity rummage sales.
618 days, 21 hours, 3 minutes, 49,5 seconds
Two days ago her husband insisted she owes him another twenty years. And he's started his own countdown clock.
619 days, 4 hours, 34 minutes, 30 seconds
A tumor on hr right lung. Breast doctor, oncologist, CT scan. Next week: neurologist, endocrinologist, biopsy, pet scan (if her glucose is under control). This is all happening so fast she can't catch her breath.
Friday, May 11, 2007
619 days, 20 hours, 3 minutes, 41 seconds
April 3, 2007: A woman suffering from a debilitating migraine headache who was mistakenly arrested for drunken driving has agreed to accept $1,500 to drop her lawsuit against the Portland police. She was driving home from Thanksgiving dinner with friends in 2004 when she suffered a migraine so severe it forced her to pull over and vomit.
619 days, 20 hours, 28 minutes, 49 seconds
He's getting too old for this, she recalls him saying. Every six months or so she'd get in the car and head for New York on a book-buying trip. She'd been high on Ritalin, some tranquillizers from the night before still in her system. And three times out of four she'd have an accident driving home, and her father would have to drive out late at night to rescue her. Too old for this. And indeed he seemed old. He turned 52 a week after she moved to the city.
619 days, 20 hours, 30 minutes, 25 seconds
Last Sunday, over dinner, her father talked about how awful it was leaving her in that hotel in New York. And then how he had to drive back up the next day to move her to a different hotel because the first was full of prostitutes. She tells him he's got it wrong. He took her to one hotel. And it was three or four months later when the prostitute was murdered in the room next door to hers. She'd been in Atlantic City for the weekend, and they'd driven her back. The little old woman on the other side of the hall, the one she shared a bath with, came out to give her the news. And she stayed in that hotel another month before finding an apartment.
619 days, 20 hours, 45 minutes, 32 seconds
Peru, Indiana: April 23, 2007: An 11-year-old girl stopped a van that went out of control when her diabetic mother became ill, police said. Besides stopping the van, Abigail kept her mother and 8-year-old brother calm and informed paramedics about her mother's condition. Deborah Parker, 36, of Muncie, who had been driving, was unaware of her surroundings. She was treated for low blood sugar. Abigail told police her mother had started driving erratically at about 80 mph. The girl said she climbed from the rear seat of the van onto the woman's lap and managed to stop the vehicle before calling 911.
619 days, 21 hours, 11 minutes, 21.4 seconds
It was 11 nights ago, driving home from Brooklyn. She'd had a bad headache all day. Her husband was beside her in the car. Up 6th St., left on Flatbush, over the Manhattan Bridge, somehow up to Houston St., then Bedford, then what she thought was Hudson, what she thought was 8th, the meat market, some torn up street (her husband ask where she's going ), what she thought was 8th, over on 14th St., east which she thought was west, the cops' lights behind her. One cop approaching each side of the car. Did she do something wrong? No, they pulled her over because she was weaving in and out of lanes. Is she okay? She's fine, she says. It was just that blinding headache, she didn't say, pulling out more slowly, heading up 6th Ave., trying to concentrate. She thought it was nothing more than a simple, if constant, headache. Later she'd admit she was in denial. Or weaving in and out.
619 days, 23 hours, 33 minutes, 54 seconds
Her husband imagines there will be another day-to-day photo sequence, much like the one she shot when the second cancer was diagnosed, when she realized all her writing would be maudlin. Day after day, from the diagnosis until she opted against blowing all the radiation on one minuscule area, she walked the streets every day, taking sometimes as many as 200 pictures. From which she selected only one a day. To get outside herself. Seeing more of her neighborhood than she'd ever imagined. But no, she says. No photo sequence this time. Her head's splitting. Even seeing some photo she needs as she walks along, it's all she can do to squint through that little hole. Whole.
619 days, 23 hours, 55 minutes, 21,7 seconds
Another picture, this from today's news. It's a hair dress that model's' wearing. A Croatian company has made it from 165 feet of blonde human hair. She modeled the dress at a fashion show in Zagreb, stunning crowds when she appeared on the catwalk.But she's a long way from Croatia.
It reminds her of those medieval Catholic penitents going about in their hair shirts. For God's glory, Praised-be-His-Name. Blessed be He who created me according to His will.
She's thinking of getting in touch with a Buddhist shrink. Someone a balding friend knows.
Thursday, May 10, 2007
621 days, 0 hours, 13 minutes, 36 seconds

Meet Hairy, the hot pink headache ball. Squishy, cooling sometimes, fun to pillow her head and let it roll out from under her. Now meet Hairy's flowers, a gift that same day, losing shape and color now. If she ever enters another contest on migraine art, she thinks to use this picture. The drooping, heavy head. The funny Hairy the Headache ball. Two gifts the same day from her Yoga teacher. It was, of course, when they just assumed the Botox wasn't working. Or the sinus infection. She bends down and picks a small pink rubber strip off her grandmother's soothing rug. Hairy's going to lose all his hair, she says.
620 days, 11 hours, 20 minutes, 10.9 seconds
This is so good you could die, he says, waxing poetic over a Blimpie this time, probably from a rat-infested back room. She tells him that's not a good comparison right now. He says he realized that as he was saying it.
620 days, 11 hours, 56 minutes, 53 seconds
Walking into the neurologist's office yesterday, she detected a faint sweet smell, as of flowers or air freshener (she didn't see any flowers). And she almost said how this often triggered headaches, and how surprised she was to find it there. But by that time she was seated in the low recliner and the doctor had started talking.
620 days, 12 hours, 48 minutes, 20.2 seconds
1995. A formerly close friend, living in Wyoming, developed cancer that quickly spread throughout his body. He left his wife. As he put it, he'd been caring for her (she had MS) for years, not out of love but out of duty. And before that, his marriage at a standstill, he couldn't bear being away from his children. He always thought at some later point there'd be time for himself. But the cancer pushed that point. Another two or three years, they said. He lasted more like eight years. He married his lover, spent their honeymoon at the Casper Hospital. But what sticks out most in her mind is an email he wrote about his mother coming to visit, and how distraught she was at the prospect that her son would die before she did.
620 days, 22 hours, 19 minutes, 21.5 seconds
She takes her wedding ring off before going to bed. She puts her ring back on.
620 days, 23 hours, 11 minutes, 6.7 seconds
First it was: will this computer last until there's a new president? Then it was: will either or both of their fathers die while she's writing this blog? At the moment none of that matters.
620 days, 23 hours, 54 minutes, 32 seconds
Yesterday's news: Misdiagnosed man seeks compensation. John Brandrick, 62, was told two years ago that he had terminal pancreatic cancer. He decided to spend his remaining time in style, quitting his job and spending his savings on hotels, restaurants and holidays. A year later doctors reversed their diagnosis. He was suffering from pancreatitis, a non-fatal ailment. Meanwhile he'd spent everything.
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