445 days, 12 hours, 50 minutes, 37.4 seconds

November one. Month eleven. Part eleven of this blog. In fifty minutes it will be eleven hours. She stands up for the first time in days. She’s never felt so lonely.

447 days, 1 hours, 8 minutes, 21 seconds

In today’s weird news, yet another medical mishap. Surprise, surprise. A woman was treated with the Gamma Knife on the wrong side of the brain. Not to worry, not to worry, this does not necessarily harm the patient. Just a radiation mistake. She thinks of swelling three months later, trying to walk, she thinks about blacking out, she thinks of falling. She thinks and thinks and thinks of a lot of things while she can still think. The computer was supposed to spit her out if things weren’t perfect. The computer was supposed to protect her.

447 days, 6 hours, 22 minutes, 15 seconds

The bickering. Ask her what she remembers about this past week when she’s been too sick to write and she’ll tell you the bickering. It started at the oncologist’s. And God knows why she didn’t write it down at the time. There was a woman and her husband already there, the woman in the seat with a tray table that she usually uses. The empty chemo chair next to them. She was trying to get a DVD player to work. He was trying to help her. The nurse was trying to help her. Then the woman wanted to know again what drugs she was taking and her husband told her. Isn’t that bad for the liver, she asked. Or is it the kidney? He told her again what drugs she was taking. She asked the questions again. She tries to get the DVD to work. She says they must have brought the wrong tape.

Busy day. A young man in his 40s comes in and takes the seat between them. Everyone gets talking. He’s a doorman, comes for sessions every six months or so that’s all there is to it. She doesn’t remember how or why or when but the three of them get into telling stories, laughing their heads off to the point where the nurse has to come and remind them to be quiet. Stories about his work? Stories about his treatments? They’re having so much fun.

The man leaves and things quiet down. No more bickering. She and her husband just sit there watching from the distance. By tomorrow they’ll be the ones who bicker. It’s started already.

454 days, 22 hours, 48 minutes, 49 seconds

"It's an important concept for our fellow citizens to understand, that no one in need will ever be forced to choose a faith-based provider. That's an important concept for people to understand. What that means is if you're the Methodist church and you sponsor an alcohol treatment center, they can't say only Methodists, only Methodists who drink too much can come to our program. "All Drunks Are Welcome" is what the sign ought to say."

454 days, 23 hours, 28 minutes, 44 seconds

June 18, 2003: George W Bush has fallen off a Segway - a new stand-on scooter designed to make motorised travel user-friendly.The machine went down when he stepped onto it at his family estate in Kennebunkport, Maine, but he managed to leap to safety, landing on his feet.

454 days, 23 hours, 44 minutes, 4.9 seconds

Bush 'falls ill' at G8 summit: Friday, 08 Jun 2007. Mr Bush was said to be suffering from stomach pains overnight and is now set to miss some of the discussions scheduled between leaders about Africa today. The BBC reports that the US president fell ill last night and showed TV footage of him drinking a non-alcoholic beer with fellow leaders including British prime minister Tony Blair and German chancellor Angela Merkel. Earlier, White House official Dan Bartlett joked that Mr Bush was eager not to follow in the footsteps of his father, who famously threw up on then Japanese prime minister Kiichi Miyazawa at a state dinner in Tokyo in 1992.

455 days, 3 hours, 45 minutes, 13 seconds

They watch two Ben Casey episodes, accidentally starting on the wrong disk. She’d forgotten he was only a resident. She’d forgotten his temper. Tracy, next door, says that when she trained at Columbia Presbyterian back in the 60s they loved Ben Casey. They used to page him all the time. Tracy, neighbor, friend. The first nurse she put in the hospital. She thought, for a moment, of naming this new computer Tracy or Tracer, but Tarceva’s better. This will save her life. Too weak to stand up right now. Different visiting nurses announce themselves. So the whole building knows. And she fell.

456 days, 20 hours, 14 minutes, 11 seconds

So it’s 4:30 in the morning again, 1:30 in California, and she’s spreading moisturizer on her legs and thinking how she really has to call her uncle. He turned 90 on the fourth of July and they’d planned on going out there before all hell broke loose. And she hasn’t had the nerve to call and explain. Another cousin who was there just died of stomach cancer. Cancer men. Her uncle, Charles, Ron. She finds their smiles irresistable. The cream on her legs is soothing now, until she notices all the scabs behind her left leg, starts to pick at them. And she thinks of unions.

459 days, 3 hours, 1 minutes, 48 seconds

Back to Ben. Big Ben. And how it was so important to her British friends that she attend a late-night session of Parliament. Let's draw the world back into focus here.

459 days, 6 hours, 56 minutes, 51 seconds

Surprise, surprise, the computer didn't make it. Though she can still get on in Safe Mode, with Networking.

She'll get another Toshiba, she supposes. 17-inch screen. Two disk drives. One of the cheaper ones. It'll break a few months after the warranty expires. There's also the HP, of course, but the Toshiba's sleeker. Also, she keeps confusing the name with Tarceva, the pill they say will keep her alive another day, another week, another month of…

459 days, 7 hours, 7 minutes, 40 seconds

And there was a little girl who had a little curl right in the middle of her forehead. Everybody loved her curly hair. Four sessions, it was promised. Then two weeks later it would start growing back. There's really going to be a struggle now.

459 days, 10 hours, 18 minutes, 48 seconds

After being unable to lift her head yesterday, she wears black for chemo today. Black tights. Black and white stretch jersey she feels thin enough to wear now. Black and grey Parkhurst hat. Blue socks.

She forgot about white for Yom Kippur.

"You realize that, except for the cancer and the diabetes, everything you're going through now is self-inflicted," he tells her. She stares at him, then the window, then him again. This isn't what you tell a potential suicide. But he explains she's the one who made the decision to continue with the chemo despite all its side effects. And he's proud of her.

Except this can't continue. Not today, at least. Anemia. Her platelet count too low. The doctor gives her a shot. And all those steroids already in her body. Keep her up at least. Same time next week. Same time next year. It doesn't matter. She comes home and puts on her ghost scarf. Black and white.

She forgot about white for Yom Kippur.

460 days, 23 hours, 10 minutes, 22 seconds

She woke up this morning with a blood reading of 88. As in 88 piano keys. As in the 88 keys on the keyboard she bought him as a Hanukkah gift right before her birthday. The first arrangement he composed on it was happy birthday. After that all hell broke loose.

461 days, 22 hours, 9 minutes, 16 seconds

She's writing and writing and writing. Blubbering. Probably drooling out of the corner of her mouth. Typing with two fingers and cotton gloves on. It's tomorrow.

461 days, 22 hours, 15 minutes, 49.8 seconds

Man with van. Manny with van. $50. He doesn't need the money, but his mother died two months ago, and she always enjoyed helping people.

She remembers to thank his mother.

461 days, 22 hours, 39 minutes, 56 seconds

A "desk" he calls it. No way. Where do the legs go? Entertainment center, maybe. Or the bottom half. Biggest god-damned thing she's ever seen. And heavy. Perfect for magazine storage. Sitting in the garage for days now. Probably out on the street tomorrow, with the rest of the furniture. She sneaks down to the garage at 3:00 a.m. to take another look. Can't even lift one leg. But she's got to have this. Desk? Okay, desk. Whatever. With both rear seats down she can get it in her car, or thinks she can. Prays she can.

Turns out it's been promised to someone else. Someone who hasn't seen it yet. Just what she needs to hear. She thought what you see is what you get. Thought this was fair game, imagined it in the back of her car. In her storage space. Then it shows up at the door to her apartment. She must be seeing things.

461 days, 22 hours, 56 minutes, 44 seconds

Delicate pink-framed reading/distance bifocals? Where the hell did these come from? For the second night in a row she changed glasses to read a menu, then forgot to change back. Used to be her eyes were immediately strained, but she doesn't even see the difference now. And she writes this with cotton gloves on. She's in the middle of a virus scan.

461 days, 23 hours, 3 minutes, 7.6 seconds

Gaudy pink all around her, marking the strides against breast cancer. Been there. Done that.

461 days, 23 hours, 18 minutes, 21 seconds

She slept for maybe an hour, right around the news, then almost just turned off the computer and said screw backing up, screw the night's meds, screw her arms and legs. She could have drifted back to sleep in seconds. But it just turned tomorrow. The day she's been waiting for. C Day. D Day. V Day. She sees the doctor at three o'clock (probably means four). They decide if the chemo continues. And she doesn't know what she wants. At the moment – no more tomorrows.

462 days, 1 hours, 41 minutes, 35 seconds

So she goes with a friend for brunch not dinner, because these days that's when she still has energy (they both cover their eyes as they pass the hat store), then on the way home stops to pick up a garment rack for the storage space, only it turns out this friend bought the same double-level rack and now doesn't have room for it. Call it a gift, a trade, a lucky charm.

He helps her put it together, stands between the bars and begins Cat's Cradle. She thinks of the cat she had, its last two years alone in an apartment half the size of this storage space. Maybe a third the size, but there was a loft bed, and a ladder. Clumsy old cat, not very good at games, but she supposes this is what storage feels like. No strings. Too many strings. Even her fingers ripped apart today.

462 days, 4 hours, 58 minutes, 44 seconds

The camera scans black and white pictures of children as an announcer says: "Hillary stood up for universal health care when almost no one else would, and kept standing until six million kids had coverage."

"She stood by ground zero workers who sacrificed their health after so many sacrificed their lives, and kept standing until this administration took action," the ad's announcer says as a photograph of Clinton, wearing a face mask at the World Trade Center cite, appears on the screen.

"So now that almost every candidate is standing up for health care for all," the announcer says, "which one do you think will never back down?"

462 days, 5 hours, 8 minutes, 47 seconds

System shutdown. Reboot. Reboot again. Go into safe mode. What did she expect? The computer's not working well either.

463 days, 7 hours, 25 minutes, 4.1 seconds

465 days, 12 hours, 14 minutes, 27 seconds

Hold onto your hat, the CBS weather forecaster says. Wind gusts up to 30 miles per hour. And she doesn't have a hat. But at least she's hearing the news for the first time in days. She promised the driver she would make it worth his while. Then he almost misses the exit and has to back up. She's terrified.

465 days, 12 hours, 55 minutes, 48 seconds

She has one hour and ten minutes to go. She still hasn't decided what to tell her students.

465 days, 13 hours, 20 minutes, 13 seconds

The first taxi refuses, the second talks of trouble on the bridges but agrees to take her to Forest Hills. He calls his boss, and says he'll be late getting back. He has a lady here and she's sick. God, does she look that bad? It's been a morning of one crisis after another. She woke up covered in Vaseline. The nurse didn't show. The computer wouldn't function. He tells his boss she just got out of the hospital.

466 days, 21 hours, 38 minutes, 9 seconds

She takes the green hat with all the buttons, more hippy than retro, wants to add the 1-20-09 button a friend gave her, but finds the clasp won't open. She takes this as personal.

467 days, 1 hours, 40 minutes, 21 seconds

The jovial neighbor who drives the school bus heard the crash and rushed to the elevator. Her husband heard the crash. One taxi hit another, which jackknifed right in front of their building. The crowd's already gathered. Someone whispers of a mysterious black car that must have sped away. Cops call for a bus. Two busses. There's a fire truck standing by, just in case. She heard nothing.

468 days, 6 hours, 2 minutes, 21 seconds

The hat will have to wait. It's too cold. And too tired.

468 days, 10 hours, 16 minutes, 32 seconds

Two, four, six, eight. Who do we appreciate? No one, the anorexic sorority brat answers. But these days she appreciates all her friends.

468 days, 10 hours, 17 minutes, 48 seconds

I see him. He's a little guy, but he's bouncing up and down. Keep pumping your fist. – The vein.

468 days, 11 hours, 19 minutes, 52 seconds

Another doctor's appointment, then another hat, she thinks, trying to keep the balance. She remembers going with her mother to the doctor, after which they'd go to Woolworth's and pick out a toy. This was in the early 1950s. People never uttered the word psychiatrist aloud. And the Medical Towers building was next door to the White Castle. She loved those squares.

468 days, 13 hours, 20 minutes, 33 seconds

And she's still by far the highest bidder on the Ken Ben doll, but there's another 9 hours and 13 minutes to wait. Why, oh why, did he have to be one of the few items she couldn't buy right away? Hurry, hurry, get home safe. The first night she slept with her Pinocchio doll she bit his nose and broke it. But this is a watchful doll, not a sleeping one. She thinks of the Guatemalan worry dolls, around the apartment somewhere, missing for years. The first night he thought he'd broken one. It was so small. Ben comes, by the way, from Salem, Ma., which the seller lists as "Witch City." Of course there are voodoo dolls, but he's still in shrink wrap. Her one play was set there. Child's play.

470 days, 19 hours, 24 minutes, 54 seconds

An orange a day keeps the apple away.

472 days, 0 hours, 30 minutes, 28 seconds

Given a half dose of steroids and twenty minutes, she can even double-tie her shoes. This is progress. She remembers her mother's shoes with velcro closures. The pride in her husband's voice, the only boy in kindergarten who could tie his shoes. The rocking horse in the one children's shoe store that she loved to bounce up and down on and the x-ray machine that terrified her. There were the multi-colored sneakers she wanted one summer with L and R printed boldly on the toes, and how her mother refused to buy them and she still can't always remember which way is left.

472 days, 19 hours, 5 minutes, 42 seconds

She bids on a Ben Casey "She'll be going home soon" puzzle (#3 in the series, third on a match), and buys an unopened board game. She also bids on a Ken doll in a Ben Casey doctor suit (made in Hong Kong and still shrink-wrapped). Hopefully the laad won't leak. Four days, seven hours left before she wins. She increases her bid. She needs Ken not Ben tonight. And he'll stay home with her tomorrow. Ken. Ben. Ken. Ben. Then.

472 days, 20 hours, 28 minutes, 38 seconds

So she orders the full set of Ben Casey shows on DVD – 28 disks, 102 episodes, 1961 to 1966, thinking maybe those scenes of doctors working so hard against all odds might work as bedtime stories. She used to leave the room or shut her eyes during the operating room scenes in those days. Maybe she still will. 102 episodes, and actually she reads elsewhere there were 153 episodes, possibly this is missing the first season. It might take ten days to ship. Then 102 Arabian nights, skip a few, round it off to 125 nights. Bush will have 347 days left in office. Less than a year. But it'll be enough to bring back Kennedy's Camelot. To make her understand how lucky she is now. Not only modern medicine, but the doctors care. Or two, at least, one she called at home late tonight, the other immediately returned her page. Still her panic continues. Klonipin doesn't do a damned thing. Ben's chipped head bobbles. She's placed him on the bed sideboard now, opposite her own head, trusting he won't fall and hurt her (if there's an Earthquake, Mary wants a teddy bear to wake her). There was the afternoon she watched the Ben Casey rerun, then prayed not to wake. These nights she's unsure what to pray for.

472 days, 22 hours, 29 minutes, 51 seconds

New Jersey on Monday joined seven states in filing separate lawsuits against the Bush administration's challenge of proposed federal rules the states say will force poor children to lose health coverage. "The Bush administration has gone beyond its regulatory rights," New Jersey Gov. Jon S. Corzine said as he announced the lawsuit at an East Orange health center.

473 days, 2 hours, 24 minutes, 9.8 seconds

She almost bought an orange hat in the consignment store today. Then she saw the price tag. Rust might be more fitting anyway.

473 days, 2 hours, 57 minutes, 39 seconds

Balloon head. Swelled head. Hippopotamus. The orange is personal. And she'll never have children.

473 days, 5 hours, 52 minutes, 20 seconds

The first time they were in Manhattan Mini Storage, he said they ought to be married there. Last night, seeing that huge basement space, he decided it was the perfect setting for a murder.

473 days, 11 hours, 6 minutes, 5 seconds

She goes back to the CJHats site and orders the new black and white Halloween Ghosts can't fail scarf. She's got to have this one. She worked as a ghostwriter years ago. It's different now.

473 days, 11 hours, 39 minutes, 4.3 seconds

Time will tell, her father-in-law's future second wife said the first time they met her. But they were hopeful. And the time seemed to bond them well. Not that there weren't mishaps. Him cleaning the roof of the house next door (also hers), dropping the ladder, waving at her through the kitchen window, and having her joyously wave back. Driving in the motor home (where they first slept together) to Houston, and the car hitch came off in the middle of Nashville; she had to jump out, run back and save the Buick while he kept driving. A hospital mixing up his blood tests, saying he had leukemia, and her thinking if that's the case she'd marry him right away to make things easier, but hoping he could have a year to finish grieving before this next commitment. A year would be time enough to know for sure: she thought, he thought, they thought.

473 days, 21 hours, 42 minutes, 33 seconds

He sleeps, or tries to sleep. She types. The clicking of the keyboard. Last March and April he'd finally get upset and ask her to either shut down or at least go downstairs so he could sleep. By June he called it the most comforting sound in the world. Type faster.

474 days, 0 hours, 12 minutes, 11 seconds

00-04-04. Oh, for what? Because she wants all her files, family photos, books she's reviewed, research books (Judaica, mermaid, unicorn, 50s music, persona, Salem witch trials) , artwork, and original publications closer to her. Because it's cheaper than buying another apartment (which she almost did yesterday). She rents the largest storage space she can find: 10 feet by 20 feet. But in the basement. Pipes over her head, like they had in the apartment they rented some summers when she was a child (that's how they paid the mortgage). Reaching up to touch the pipes. Praying they don't burst on her, or that she can organize the important material where it won't be flooded. She'll move many books along with magnificent cases she's collected over the years. She'll move in chairs and tables. She'll hire professionals. She'll take out insurance. The drive gets longer and longer. It's now after midnight. Time's running out.

474 days, 22 hours, 1 minutes, 55 seconds

Affectations can be dangerous. – Gertrude Stein

476 days, 1 hours, 27 minutes, 30 seconds

Iraqi Deaths Fall by 50 Percent. Only 64 military men and women were killed in September, and this hasn't been seen since July 2006. Of course, not all deaths are reported, especially of civilians. These are supposedly heartening numbers. But everyone's weak during Ramadan. And the hunger's fierce. Fall. Fall. London Bridge is falling down.

476 days, 1 hours, 39 minutes, 32 seconds

No ham. No cheese. No artichokes. No meals with friends. She needs sugar. Low-fat coffee cake for lunch at a Starbucks way too crowded. Then a cab the few blocks home. For dinner she hydrates her body with Tasti-d-Lite custom flavors. Vitamins, at least. Or at least she hopes so. Pumpkin or egg nog. Fall. Fall. Fall.

476 days, 5 hours, 45 minutes, 9 seconds

Florence Nightingale calls from the liquor store. The bubble bursts.

477 days, 0 hours, 31 minutes, 23 seconds

Last day of the month. Last chance to write here. Her body shut down. She wishes the world would shut down. The news would shut down. The country would shut down. Pay rent or sleep on the breezeway, but at least she'd be able to breathe there. At night, he says, he can hear the cancer cells dying, one by one. And blue flowers, carved in a paperweight from Sweden, promise not to die.

482 days, 10 hours, 45 minutes, 3.8 seconds

Monkey in the middle. A man gets on a plane in Lima with a cute little monkey under his cap. They make it to Fort Lauderdale and wait hours for the flight to LaGuardia. The monkey extends a paw and plays with his pony tail, the same color as his fur. People nearby ask the man if he knows there’s a monkey in his cap. On the plane, attendants finally expose the monkey. It spends the rest of the flight in the man’s seat, the middle seat, the one she avoids at all costs. Messy grade school pony tails making her face ache were more than enough for her. No hair now. And she doesn’t wear baseball caps.

482 days, 13 hours, 53 minutes, 43 seconds

So it’s the middle of the night and her husband dreams he gets an emergency call from work and he tries to help but then realizes a woman he works with can handle this better so he takes the phone in the bathroom so as not to wake her and dials. Then he comes back to bed and can’t find the phone. He finds it in the bathroom, then has to double-check that he was dreaming, no one really called, and he decides to leave the phone in the bathroom, let her get as much sleep as she can. He tells her the dream when she wakes and she reminds him this is the woman who was her hat example.

484 days, 22 hours, 44 minutes, 2 seconds

She recalls a few years ago, how important those orange gates were in Central Park. Orange of her early teens. All the thoughts and plans and hopes of suicide.

485 days, 1 hours, 9 minutes, 20 seconds

Red light. Green light. Red light. Green light. She goes, already tired. Her first Yom Kippur service ever. She wants to hear the shofar. She wants her name inscribed in the Book of Life. Red light. Green light. She isn't sure what she wants. But she sits at the Javitz Center, facing sunset. Facing New Jersey as the lights fade. The Ark is opened. Stand if you are able. Her hand trembles on the prayer book, which she covers with his hand. Stand if you are able. It's been a hard week. She feels welcomed here. But maybe there is no book.

488 days, 6 hours, 52 minutes, 54 seconds

Rock smashes scissors, scissors cuts paper, paper covers rock. Moisturizer goes on first, wash your hands, green covers red, wash your hands, two shades of beige blend together, and she wonders how long until it all falls apart.

489 days, 9 hours, 52 minutes, 37 seconds

One of the worst days of her life. The new pill making her blood go the wrong direction. A migraine for two or three days now. Then she looks at the date and sees it's her cousin's birthday. Diane. Of course Diane.

489 days, 11 hours, 48 minutes, 44 seconds

Hats off to Larry,
He broke your heart,
Just like you broke mine when you
Said we must part....

This song's been going through her head for weeks, might as well write it down. And, unmusical as she is, it sounds like the same melody as Who Wants to Buy This Diamond Ring. At least around the same era. She might have played either one on her accordion, but didn't.

The ring tangled in the bed sheets. For the hysterectomy years ago, they taped it down but let her wear it. And she recalls its comfort. The woman in pre-op screaming where's my husband? And her, wheeled to her room, hearing her husband's voice on the phone, not able to locate him. That ring still taped on her finger. Fool's gold. When they worked on her brain they removed it.

489 days, 13 hours, 3 minutes, 29 seconds

Well, her father's certainly losing it. He weighs less now than he did in high school. Complains he can't get a belt small enough, and suspenders don't hold his pants up. But that's not what she's thinking about.

489 days, 22 hours, 56 minutes, 18 seconds

She window shops for hats and sees only headless manikins. Beauty. Style. Haute Couture. When did this start?

No start. No end. Her migraines continue. Her brain swells. She recalls, years ago, browsing through a headache chat room and someone asking where they could buy a guillotine. And in a news story last week, a 41-year-old Michigan man's body was found in the woods next to a guillotine he'd built. It was bolted to a tree and included a swing arm he could operate himself.

So much for Dr. Kevorkian.

489 days, 23 hours, 26 minutes, 2.3 seconds

Apparently she isn't the only one. This on Madison Ave.

The only problem was she stopped to talk. But don't mind her. It's been a long day. Very long, very tense, too tired to talk straight. And they weighed her down with pamphlets.

491 days, 5 hours, 23 minutes, 2 seconds

Was it second grade? Or fourth grade? The father of a boy in her class owned a novelty shop on the Boardwalk, and he sold all the kids big white buttons with their names in red. But of course they didn't have her name. She cried for what seemed like weeks. She cursed her parents.

Then there was the Nixon button, traded in for the Kennedy button.

The first button she ever wore seriously was during the 2004 election:

2004 No Carb Diet
No Cheney
No Ashcroft
No Rumsfeld
No Bush

Two out of four isn't bad, some people would say. But she's never been some people.

491 days, 5 hours, 29 minutes, 21 seconds

Her mother, who didn't sew except to hem her dresses, had an ornate black floral cookie or tea tin which she used to store ornate buttons. They were her third-favorite thing to play with, right behind charms and marbles.

491 days, 5 hours, 35 minutes, 47 seconds

Spend spend spend spend spend. A hat, two scarves, three pairs of long velvet gloves, two pins, two polyester cowl-neck tops for around the house. All of it just to compensate.

491 days, 5 hours, 52 minutes, 12 seconds

So she said she wanted a green hat, and this is definitely green. More hippie than retro. Someone's sewed buttons along one side in an interesting pattern, where other hats have feathers or flowers. Mostly small shirt buttons. Mostly ivory with thick green wool thread, but other colors as well. The street vendor insists the hat is new.

Her mother had no pattern for those charms.

Her hand so bad today she can barely clasp a button. And one fell off of a blouse last. It was the top button, so it barely matters.

493 days, 7 hours, 39 minutes, 52 seconds

Months ago now, when Hillary threw her hat into the ring, she called for a cap on spending in Iraq. But that's all semantics. And she's starting to look more closely at Obama now.

495 days, 1 hours, 16 minutes, 9 seconds

Back from dinner, they stop in the drugstore for Saltines – the one thing she's convinced is helping ward off the expected nausea. She tells him Saltines, warm diet Coke, and sucking on lemons is all that's ever worked for her. Then he, not she, mentions the lemon law.

495 days, 22 hours, 53 minutes, 28 seconds

Speaking of hats again – once again last night, the Mets honored those who died on 9/11 by wearing caps honoring the New York City Police Department, New York City Fire Department, New York City Fire Department Paramedics, New York State Courts, Port Authority Police Department, and the Office of Emergency Management. Each cap will be signed by the player or coach who wore it, then sold at a charity auction. They won again, at home, against the Braves.

495 days, 23 hours, 23 minutes, 14 seconds

Yesterday was 9/11. A Tuesday, as it was that first year, but hot and humid, with thunderstorms, not the crisp clear fall day it was six years ago. The next year, not even recalling the date, she'd been walking the city with her camera, realized she left her battery charger upstate, and headed down to J&R. At first she didn't understand the crowds of people. Then she wandered among them, circling the site twice, before she began to focus on half-dead flowers stuck in the fence, most with notes. The next year there was nothing to photograph. And it's all old hat now.

496 days, 0 hours, 23 minutes, 59 seconds

A St. Louis Cardinals baseball cap, a NY Yankees baseball cap, a red hunter's cap, a burnt orange Texas Longhorns baseball cap, a white ski cap, a fisherman's hat, a black beret, a bandana, a military insignia hat, a light-blue canouflge. James Madison, 50, alternately dubbed The Hat Bandit and The Mad Hatter, had a clean-shaven head. The hats protected his identity when he robbed 19 banks in ten months. But finally New Jersey police caught up to him.

496 days, 13 hours, 48 minutes, 21 seconds

Set the clock ahead. Please set the clock ahead. George Bush is no longer president. Soldiers are still being killed in Iraq, but that no longer interests him. Medicare no longer interests him. Very little interests him. He no longer goes to church. He stands in front of a mom and pop drugstore, one of the few ones left in a small Texas town, trying to guess at the number of jellybeans in a huge jar.

496 days, 20 hours, 59 minutes, 51 seconds

On www.whitehousekids.gov she finds The White House issued a math challenge for kids in elementary school:

How many Marbles?

* What is the smallest number of marbles when: grouping the marbles by fours leaves 2 extra marbles, grouping by fives leaves 1 extra, and there are more than 10 marbles in the collection?

Contest problems and answers are provided by David Rock at Columbus State College and Doug Brumbaugh at the University of Central Florida.

496 days, 21 hours, 8 minutes, 9.2 seconds

Doling out the pills once a week. She thought it would be like playing with marbles: you go here, you go here, you go here. All the different colors. But now there are too many pills to count. They all seem to look alike. A bottle falls from her hand. A tray tips. She has a mini seizure. None of the pills are working. She's down on her hands and knees on the patterned tiles of the kitchen floor, trying to salvage what she can, figure out what's missing. Might as well stay here.

497 days, 11 hours, 42 minutes, 32 seconds

Transformations. Or transformers. On his birthday weekend, while he was in Rhode Island with family, the lights in her study blew out. Lights on Transformers. Because she can't tolerate the heat. His gift to her. And so she's managed in poor light, one week, two weeks, straining at the keyboard, putting on hat after hat, expensive hats, cheap hats, hats she's transformed with pins, trying to transform herself. She thinks of those cars that transform into robots. They came out long after her childhood. And she never had need of them. It's taken her this long to be able to write about any of this. Even during the day her eyes strain. In the middle of chemo her glasses break. God knows what these new medications are doing to her. She doesn't want to know. She doesn't want to see. She wants to put a hat on her head, cover her eyes, transform sickness or shame into dignity. Fashion, she calls it. But there's never been a mirror in her bedroom.

499 days, 6 hours, 42 minutes, 14 seconds

Peacock feathers. Her mother wasn't the sort to wear any feathers, but she remembers this full-feathered hat in shades of mauve and purple that someone (probably her aunt) convinced her mother to spend a lot of money for. She doesn't recall her mother ever wearing it. She thinks to ask her father where it is now, then realizes she wouldn't have nerve to wear it either.

500 days, 1 hours, 41 minutes, 1.3 seconds

She' s dreaming her hair came back. Two long thick clumps at the base of her skull, some frizzy curls on the top. Then her father calls.

500 days, 11 hours, 25 minutes, 45 seconds

The 500 mark. This used to mean something. She forgets what.

500 days, 12 hours, 4 minutes, 45.7 seconds

She remembers the regulation white camp hat, and her mother sewing those little plastic charms all over it. You could get a child's handful for a quarter from the machine at the Food Fair. She always loved charms. She never had charm.

500 days, 13 hours, 10 minutes, 27 seconds

Seventy miles south-east of Dallas. Four days. Six thousand people. An ugly butt-crack contest. A spam eating contest. A mudpit belly buster. A mattress-chunk contest where two men drink a 12-pack of beer, get into a pickup, drive, climb into the truck-bed and toss the mattress as far as they can. This disturbs the neighbors.

500 days, 13 hours, 18 minutes, 29.6 seconds

Redneck: a member of the white rural labouring class of the southern States; one whose attitudes are considered characteristic of this class; freq., a reactionary. Originally, and still often, derogatory, but now also used with more sympathy for the aspirations of the rural American.

501 days, 1 hours, 4 minutes, 57 seconds

Scarves in the hatbox. Rash.

501 days, 20 hours, 7 minutes, 41 seconds

Man leads normal life with tiny brain, the headline from July 22nd read. Forty-four years old, married with two children, an IQ of 75. As an infant he'd had fluid in his skull. There was little more than a thin sheet of brain tissue. The whole brain was like those shrunken skulls boys tormented girls with in second grade. And yet, doctors say, the brain somehow adapts. If something happens very slowly over quite some time, maybe over decades, the different parts of the brain take up functions that would normally be done by the part that is pushed to the side, said a doctor not involved in the case. The brain is very plastic.

501 days, 20 hours, 48 minutes, 22 seconds

The MRI confirms that the stereotactic lesion's shrunk, leaving swelling all around it. And here she's cutting back on steroids, her hand bad again. But she hasn't spoken to the real doctor yet.

Meanwhile, the Rings of Saturn paperweight arrived yesterday. Nowhere near as nice as others in the celestial series. It looks like a top, and seems as unstable as she's been feeling. Topsy Turvy. It needs a stand to stand. The vacant white rings on this particular piece are heavily flecked with gold, so the swelling both stands out and fills in. Silence is golden. So is Hell paved over. It all depends on the angle. She feels like she walks at an angle. Falls at an angle. She'd expected, no, wanted, just emptiness.

From the story card: Saturn's light rings are composed of ice chunks and rocks ranging in size from as small as a dust particle to as large as a car. Rocks in her head. Rocks banging together like lobster claws. Tired and seeing double. Some artist's vision. And last fall, when maybe all this was maturing in her body, she lost her three color gold wedding ring, only to find it days later tangled in the bedsheets.

501 days, 22 hours, 48 minutes, 8 seconds

She needs her head for something other than a hatrack. So she buys a hatrack. If you've got it, might as well flaunt it. Her latest work of art.

502 days, 21 hours, 59 minutes, 51 seconds

A blip on the news tonight about "popcorn lung," a disease that's been affecting factory workers since 2001, mostly in California (where that worst headache in years began, where she didn't attend her uncle's 4th of July 90th birthday party and hasn't mustered courage to call him). This isn't cancer, it goes in and destroys the lung, leaving only the hope of a transplant. $17 an hour jobs. It has to do with the chemicals in the butter flavoring of microwave popcorn. Masks don't seem to help. But only one death has been confirmed and OSHA doesn't know what to make of this. Now a consumer has been stricken down. But it's his own fault, he should have known better than to spend years microwaving popcorn several times a day. Breathing all those fumes as the bag swelled. Fun to stay and watch. Putting itself on display. And at the oncologist's this afternoon the snack basket was visibly depleted and there were no bags of cheddar-flavored popcorn. She settled for veggie chips.

503 days, 11 hours, 14 minutes, 22 seconds

A news article she can’t seem to find right now – how Bush showed up to greet troops in Iraq, or maybe it was Afghanistan, wearing his old Army Reserve uniform. It was too tight.

504 days, 22 hours, 41 minutes, 55 seconds

They had lunch in Greenwich that day, at a place called Glory Days diner. He stopped there again last weekend with his brother. His brother served in Vietnam and rose to the rank of Colonel. Two years ago, in Galveston, he took them to a military surplus store the likes of which they’d never seen before. Even WWI items. She supposes she should buy a fatigue cap, for the bad days. You can buy them new on the Internet for undder $10. But they’re only caps, so would she still be covered? Glory Days. That’s how she desscribes them.

504 days, 22 hours, 54 minutes, 4.3 seconds

He reminds her that the last time she got gas was the day they just took a drive. She was fine for about three hours, driving back roads, then all of a sudden she was maybe fifty miles from the city and this unbelievable fatigue set in. Fatigue is a hat, he tells her. No, it isn’t, she says, he’s thinking of fatigues, the military combat uniform which includes a hat. Camouflage. Like they wear in Iraq. Or are supposed to wear.

505 days, 6 hours, 28 minutes, 22 seconds

And the Toyota, Jewish American Princess that she is, confused at not being driven these past three months, turns on her check engine light at ten o’clock at night, ten miles from the country house. One more thing to panic about. Last time this happened it was the transmission fluid. But it could be anything. And she needs an oil change. Sunday of Labor Day weekend, last day of his birthday week, most of the car places closed. At last an Auto Zone that can quickly get a computer readout: evap. Meaning, and yes, they double check, she’s lost the gas cap.

509 days, 9 hours, 32 minutes 9 seconds

There’s an abstract print of big floppy hats facing her when she lies down in the E.E.G. room. But she has to take her hat off. The technician wants to know why she shaved her head. He tells of his sister who went through three rounds of chemo for lung cancer. It spread to her brain, then her liver. He scrubs her head with what feels like Ajax. Have to make good connections, or there’s no point. Wire afteer wire after wire after wire, pale, multi-colored wires. He tells her to relax, to close her eyes. Lights flash, slow then faster. If this doesn’t bring on a migraine, nothing will. He tells her to open her eyes. He asks if she’s right or left handed. He tells her to close her eyes, then to try and sleep, and she sleeps for once. She’s been up since six again. He pulls off the wires, scrubs down her head again. She has to remind him to dry it please. She doesn’t want to catch cold.

510 days, 3 hours, 5 minutes 19 seconds

"I make Tylenol and I promise, I'm not just making it for your kids, I'm making it for mine." This is about the fifth time today that this ad's popped up. Each time a different Tylenol employee. All men. Anyway, she went back and got the hat. And she ordered two nylon stocking caps made especially for under wigs. That's when the last ad popped up. So she no longer has to be afraid of vintage. Or Tylenol. But these days it's more often Vicodin or Percocet. She longs for those days when Tylenol was enough for her. Of course this makes her think of the Tylenol murders. The first person to die was a 12-year-old girl. She'd thought it had been someone's fiancé. Her memory failing again. Her father's old age.

510 days, 10 hours, 47 minutes 21 seconds

Another day, another medical test, another hat store. This one’s just a few blocks down from the other store and she thought she could walk there except it was hotter than she thought and they only had summer hats. Give it another month, they say. Things take time. Chemo takes time. Health takes time. Meanwhile she had to get out of the apartment on account of the terrorist cleaning there. So she goes around the corner on 72nd St. and stops in Tip Top Shoes where she’s been meaning to go all summer, except it’s in the middle of renovation with almost no stock. Then she stops to look at hats in the thrift shop where all the actresses, especially from soap operas, leave clothes on consignment. And the first thing she sees are magnificent jeweled turbans, and she wonders how many actresses suffered hair loss. Or were these used for putting on makeup, the old glamour image? But then of course there are also vintage felt hats and one rose hat with a feather made by Bonwit Teller that she’s absolutely mad about. Does she dare wear a used hat? With canccr? It looks immaculate. Bonwit Teller. William Tell shooting the apple off his son’s head. Jean Vollmer with a glass on her drugged head. Some women will do just about anything. With cancer?

511 days, 6 hours, 13 minutes 44 seconds

She knew a poet years ago who'd been a Bloomingdales model. Everyone joked about that. No one took her seriously as a writer.

511 days, 11 hours, 22 minutes 32 seconds

A little cooler today. His real birthday (which she keeps forgetting). After a ten minute visit to the dermatologist, she walks to Boomingdales to check out designer hats. She could have had her makeup done there. She shuddered at having her makeup done there. Along Third Ave., today, she passes stores like Sephora and Face. She looks in the windows.

514 days, 5 hours, 9 minutes 46 seconds

Even a little girl's choice of shampoo comes back to haunt her. She wonders how long her head will remain a watermelon.

514 days, 5 hours, 28 minutes 16 seconds

Two hours working alone in a café and already she's seeing things. She glances a Nemo storybook in Duane Reade and doubles back to see if it's a chemo hat. The pharmacy from hell.

514 days, 9 hours, 16 minutes 1 seconds

Jackie's pill box.

514 days, 12 hours, 18 minutes 39 seconds

This is a blog about language. This is a blog about politics. When George Bush reminds people they're working hard to put food on their family, where's the food really going? Africa is a nation that suffers from incredible disease, he informs us. He tells us he doesn't think we have to be subliminal about our views on prescription drugs. Subliminal --Below the threshold of conscious perception.

514 days, 12 hours, 40 minutes 22 seconds

With these new hats, with this new style, suddenly words like control and remission don't seem as bad. All her life fighting for words, rejecting anything feminine.

514 days, 13 hours, 5 minutes 15 seconds

This is crazy. After a week of nothing but sleep, all of the sudden she can't fall asleep. Up till 4 a.m., 5 a.m. then awake again before nine. She kisses her husband goodbye. She kisses his brother and sister-in-law goodbye. She packs up prescriptions to take to the drugstore. She washes her face. She puts the cream on. She runs off to buy one more hat. She doesn't have time for makeup.

514 days, 13 hours, 12 minutes 10 seconds

So it was a few days before his birthday and his brother and sister-in-law were coming into town before going to Rhode Island and staying overnight and frankly she'd been dreading this. And even though she knew she'd be alone for the next two days, it was first day it wasn't raining and she had to get out of that apartment before it killed her (and not to another doctor). So she took off at 10 o'clock and ran down to the hat store on Columbus Avenue she'd remembered looking in years ago, totally unaffordable. But the first place she thought to go now. And she bought two hats for $500. And she tried on 50 hats. And they were felt, vintage look with pins and feathers and buttons, and they were comfortable. As she tried two more stories and she got Starbucks for lunch and she got a gelato at a place where for once she didn't have to wait in line (she's within 5 pounds of what she weighed when she met him) and by the time she got home they were at the door, their car already in the lot across the street. And her sister-in-law (Southern Belle) adores hats. She'd forgotten that. She's worked with cancer patients and she said nobody ends up wearing their wigs but she modeled it anyway and she said it looks good it just doesn't look like her. She knew it. She knew it. She knew it. When they went out to dinner she decided to wear the hat. And she held her head up. And she decides she wants one more hat now, one more exotic blue hat with pins and flowers and ribbons that she can wear with denim. Not only now, but always. No more bad hair days. No more wanting to hide. No, actually, these hats have brims like that Totes hat. It's getting closer and closer to September. There are people she has to see. There are people she wants to see.